Published on June 17, 2014, by Jen in Ventriculomegaly.

I’m dusting off the blog. Lord help me.

I struggle with blogging because it is a somewhat narcissistic endeavor for me. Why should anyone care what I have to say…really? My insights are not really unique, I don’t have much to add to the millions of conversations going on in cyberspace… I much prefer one on one discussion and interaction that isn’t sooooo – one sided.


I recently find myself looking high and low for ANYTHING related to prenatal diagnosis of ventriculomegaly. Most of what I find is rather depressing, or vague, or it’s a blip – an abstract. In the entirety of Facebook, there are 900 people on the largest group for Ventriculomegaly, Agenesis of the Corpus Callosum and related neurological defects. So the blog is taking a new direction. I’ve drafted all my previous posts, because I find that none of it really matters right now. I’m going to use this tool to keep a digital record of our journey, so that others might benefit and find support, and so that those who love us can follow along if they want to.